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April 12, 2013 1 Comment

Writing about Old Age

In the New York Times review of A History of the Present Illness, Abigail Zugar noted that I write “lovely, nuanced description” and have joined “the ranks of those immortalizing the small, realistic retails of modern medical care.”

That was nice, but perhaps more interesting was the following comment: “[She] is at her best in the world of the much too old — the rooms where dyed hair grows out platinum white and small bodies lie in bed “the way a letter lies in its envelope.”

That comment is interesting because as a geriatrician, I easily could have written a collection of stories exclusively about older patients and the doctors who care for them.

But I didn’t.

This was in part because I wanted to capture health and doctoring more broadly, but also because I feared it would doom the book. Instead, I actively worked to include a range of ages and specialties, and most of the stories I took out – I have many more – were geriatrics focused.

 

Two events in recent months have confirmed my hunch. First, I attended a meeting of geriatricians at which there was lots of talk about changing the name Geriatrics. Why? Because of its negative associations.

People spoke about how they couldn’t raise money for their center or program until they changed the name from ‘geriatrics’ to ‘longevity’ or ‘healthy aging’. Longevity and healthy aging are both great things to strive for, especially in concert with one another, and we have made great progress in both arenas in the last several decades. Unfortunately, they are not the reality for many millions of older Americans or for most of those who live into extreme (medically or chronologically or both) old age.

Equally important, it’s very hard for me to imaging that the pediatricians, the medical specialty with a focus and label most like that of geriatricians, ever sit around discussing changing their name because they are associated with children.

So this is about ageism and fear and denial and avoidance, and I totally understand and sympathize with the last three of those four, but we can’t keep feeding the ugly beast that is the first one.

In the same conversation, people threw out new names such as ‘transitionalists’ and ‘multi-morbidity specialists’, but younger people can have multiple chronic diseases and transition among different sites of care. And while we have skills and systems that would help our colleagues take better care of those patients, that’s not what we do or who we are.

As the health services researcher (and my UCSF colleague) Ken Covinsky likes to say: we love old people. I know I do. I never intended to specialize in geriatrics; I fell in love with it. To remove the ‘old’ from our job description is crazy.

Road Sign

Geriatrics is taking care of old people, and most of us do this work with tremendous pleasure and pride and satisfaction, so it strikes me as tragic that we are in a position where we feel the need to consider defining ourselves otherwise.

Which brings me to the second recent event relevant to this discussion: As I was practicing reading selections from the book for my book tour, my friends and family universally nixed several of the more ‘geriatric’ selections, though they said they were powerful, important and beautifully written.

Why? It was the same story – the passages were too dark, too depressing, too upsetting.

So once again, the truth about extreme old age is getting buried, even though the same feelings that make this necessary are the ones that keep us as a society from dealing with the many, pressing challenges of aging and the current, escalating workforce crisis and, most importantly, with the untold suffering of the very old among us.

 

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One Response to Writing about Old Age

  1. martina Nicholson, MD January 18, 2014 at 11:39 am #

    I want to read those stories! There is an interesting shared truth among nurses, that childbirth and death are similar, and good labor nurses make good hospice nurses. As an aging physician (now in my 60s), I want to be there for my patients who are trying to “age gracefully”. This is a particular skill, and takes practice and discernment. It also always includes a difficult bodily presence, as we become frail and less able to do things we once did. Anne Lamott was writing about a “stitch” as she faces 60. I have SUI. I almost posted to her that I would help her with a pessary if she wants to try it. But it means saying something in public that many would find humiliating. Have you read the story by Richard Selzer about the woman who is dying of uterine cancer, and gets her period again, and feels young again, and is putting on her earrings in the hospital, as she waits for a younger man ( to whom she has become romantically drawn) who watches from the hallway? Marvelous story. I think it is called “The black swan”. Thanks for the stories you mentioned, all of them were marvelous. Thanks for your work teaching doctors to write, and to be advocates for the health of the whole society. I have been so heartened by the work of Dr. Paul Farmer, because it proves it is possible to meet patients’ needs, even in dire circumstances of poverty.

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Resources:

New York Times Health: http://newoldage.blogs.nytimes.com/ and http://well.blogs.nytimes.com/

Health in Aging: http://www.healthinaging.org/

Family Caregiver Alliance: http://www.caregiver.org/

Talking to Your Doctor: http://www.nih.gov/clearcommunication/talktoyourdoctor.htm

Kaiser Health News: http://www.kaiserhealthnews.org/

NYU Literature, Arts and Medicine Database: http://litmed.med.nyu.edu/Main?action=new

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